Brennan's Journey

The support Brennan has received is overwhelming and incredibly humbling. There is a growing number of people who are asking us how they can help Brennan through his journey and our main focus and priority continues to be prayer for Brennan, his overall health and for the doctors. But so many people are wanting to help even more. For those that feel led to help Brennan financially, a "donate" button is now available. It is linked directly to a special account for Brennan and his long road ahead. Any amount is greatly appreciated. I wish there were words to express our gratitude for all of the support and prayers B is receiving. Thank you to all and God Bless.

Wednesday, 30 March 2011


Happy Birthday to our sweet little Pnut! You are a spunky little girl who keeps us on our toes constantly. We love you so much and are so blessed by God to have you in our lives. We look forward to all the wonderful things God has planned in your life and my sweet princess...I feel so blessed to be your Mommy! You melt my heart!

Tuesday, 29 March 2011

Week 4

Here are a few pictures of the week, then on to the NEW EAR!!! So, Brennan bowled for the first time!!! He LOVES it! The lightest bowling ball is 6 lbs. so B had to do the side swing with daddy helping him There it goes! He played a whole game and could have played all day... I think we might have to sign him up for a league :) Hanging out at the park... just walking around, no swings or slides allowed yet Our friends, the Nunez Family, came to hang out with us for a bit! B's friend from preschool was having his surgery today. Yesterday I sent this picture to his mommy! Fernando is having getting his new ear soon from the same doctor! He is getting the 'tissue expander' technique so this was the first stage surgery. We plan on visiting him at his home soon! Pnuts 2nd Birthday is tomorrow and we had a little birthday celebration for her in her class today! Isn't she the cutest princess! :) ............................................................................................................. Today's appointment pictures!!! The tourist shot Monkey getting his bandages taken of finally! B was so excited for monkey! B's turn, he is intently watching a movie on the TV in the office... makes it all so easy :) Outline of the cup, and a rash on his cheek Time to wash his hair and ears He loves this part! drying off His ear is quite swollen. It will go down and take a few months to show the definition in his ear. Dr. Lewin says it all looks great! He has a rash on his cheek and some rash on his ear, so we will be using a cream to help with that. It's all shiny from the cream on it. Now he is cup and hat free!!!
Dr. Lewin and B!!!

Things we had to buy:

-Ointment to use on his cheek and ear 2x a day (on his cheeks utill the rash goes away and on his ear for a month)

-Dandruff Shampoo to wash his hair every day (it's been a while since he has taken a regular bath, can't wait!)

-Antibacterial soap (I need to gently rub and wash his ear once a day)... yikes, I'm just a bit nervous about that)

He is so happy!!!

Me and my boy!!!

So now B is asleep, in his own bed. He has been in his bed for over a week. Now that the cup is off, I am slightly nervous. I had thought of having him sleep with us again but I am just trying not to let my nerves get in the way and relax a little and realize that he should be in his own bed. It doesn't mean I won't be checking on him a lot though with the video monitor :) Hopefully I'll get some sleep tonight :)

Friday, 25 March 2011

Another Appointment

I'm sure at some point we will stop taking pictures of B's ear all the time, but since it's always covered by his cup and whenever we go to the Dr.'s we get to see it... here it is again!

We had an appt. today to have his ear cleaned and the antibiotic cream re-applied. Almost all the fungus was gone! Francesca, Dr. Lewin's Physician's Assistant, put more cream on and cupped it back up :)

B's Wed. appt. was changed to Tuesday. So... if everything looks good, in 4 more days his cup will be off for good! I'm nervous and excited at the same time.

Wednesday, 23 March 2011

Week 3 Post-Op

We had B's 3 week post-op appt. today... and even though I was nervous about it (I thought his cup was pressing up against part of his ear) it was fine!!! His ear looked great. A small amount of fungus had grown on the ear due to moisture and sweating under the cup, which we were told is common. One of the doctors put some antibiotic cream on it after they cleaned his ear and we have to go back on Friday for more cream. We have our 4 week appt. next Wednesday which is when the cup should come off for good...yikes :)

Here are some pictures from the week, and the appt. today...

We bought some new games from the Lakeshore Learning Store and B's absolute favorite is bowling :)

Their new puzzle with 'look and find' cards

Pnut doing a quick grocery run with mommy

On St. Patrick's Day we were invited to our friend's house for dinner! B and Pnut got to sit at a table with my friend's girls: Emilie, Bailie, and Rylie. Sunnie had tons of cute St. Patty's Day decorations and table themes. It was so fun to hang out and for Brennan to get some play time with some friends.

Thanks for such a special night Alber family!

Of course Sunnie made the cutest rainbow cupcakes... and sooo yummy!

Time with Mommy and Auntie Jen at B's favorite place to eat... In & Out of course!

I'm making the kiddos lunch and I turn around and this is what I see... ha ha

Going on a walk with Mommy and Auntie Jen and it downpours for about 5 minutes. We had to run and find cover under a paseo bridge... fun times!

Yummy noodles at Panera

Today's appt...

Pnut waiting patiently in the stroller. Daddy had to get some shots of this cutie...

You can see the faint outline of the cup on his face. The red rash on his cheek is from a piece of tape that I applied a week ago... apparently it was the wrong tape, oops, the dr.'s tape is much better (yes, they gave me some of theirs to use from now on :)
The white plug in his ear is protecting his new ear canal from his last surgery in October.
The yellow stuff on his ear is the fungus stuff growing on it. She said it is completely normal and common since it is covered with a cup for a week and can collect moisture from sweat... The antibiotic cream should help. We go back Friday to get his ear cleaned again and the antibiotic cream re-applied.

Closer view

Washing his hair. He says it feels good... ha ha... his eyes roll back and he almost falls asleep everytime they do this. Poor kid... sponge baths are only so fun for so long... can't wait to give him normal baths again :) But he is such a trooper through everything. It's so worth it for the end result!

Cleaning his ear

Me and my boy! (showing off his new ear... he is so proud!)

Cleaning off some fungus

Dr. Lewin is out of town this week so Francesca and a nurse took care of B's ear. Dr. Reinisch came by the room and took a look at B's ear!!! Dr. Reinisch is the one who designed this surgery over 20 years ago.

Talking about B's ear

Saying it looks "GREAT"!!!

A picture with Dr. Reinisch... we are so blessed to be under the care of our amazing Dr. Lewin and to be able to be in the same office as Dr. Reinisch! The 2 best Dr.'s for this surgery!

After our appt. getting lunch with our crazies!!!

The way home... our boy who never naps (now I have proof for him that it can be done and this little body needs them)... he even slept 2 hours when we got home!

Peaceful ride home :)